The current Alzheimer’s and dementia evidence base has insufficiently examined differences in epidemiology and experience for women compared to men. Women’s brain health is both understudied and underfunded compared to men’s brain health. Moreover, women are disproportionately affected by neurological conditions: almost two-thirds of people with Alzheimer’s are women, only 12% of the 2019 NIH funding went to women-focused research, and more than 3 in 5 Alzheimer’s caregivers are women. Understanding and ameliorating these disparities is imperative to establish an effective and equitable healthcare system.
The CWBH commends the many organizations and initiatives committed to women’s brain health and seeks to unite independent organizations working together on a volunteer basis towards a common goal.
Participation benefits include:
Generative new evidence, implementing and/or evaluating solutions, and producing other comprehensive and novel research
Exchanging information / knowledge sharing
Amplifying and celebrating research, advocacy, and policy achievements of members
Reducing duplicative efforts and increasing efficiency
Fostering relationships within the women’s brain health research & advocacy communities.
0%
Nearly 19% of women Alzheimer’s caregivers had to quit work either to become a caregiver or because their caregiving duties became too burdensome.
(Source: Alzheimer’s Association, 2024)
Composition of CWBH
Founding Members
Diana Slowiejko, PharmD, PhD
Principal Medical Scientific Director, Neurology & Neuro Rare Diseases
Genentech
Sandy Gleysteen
Director of Strategic Partnership & Special Projects
WAM at Cleveland Clinic
Communicates project vision
Provides strategic direction
Secures & stewards resources
Supports Steering Committee
Drives stakeholder engagement
Accountable for coalition’s success & sustainability
Approves CWBH outputs
Steering Committee
No data was found
Advises Leadership Team and Work Groups
Provides subject matter expertise
Contributes to critical project decisions
Provides guidance and expertise to stakeholders
Supports dissemination efforts
Facilitates introductions with key opinion leaders and other stakeholders
Reviews CWBH outputs
Work Groups
Directs tactical efforts with support from Avalere & Founding Members
Responsible for success metrics for tactics
Avalere Health
Naila Wahid, MS
Principal
Avalere Health
Shayna Adams, MPH
Consultant
Avalere Health
Alexandra Bryan, MPH
Senior Associate
Avalere Health
Leads content development
Accountable for dissemination of CWBH outputs
Facilitates tactical efforts and is accountable for success metrics